Showing posts with label Stellan. Show all posts
Showing posts with label Stellan. Show all posts

Sunday, July 31, 2011

Love…

I have been thinking a lot this weekend about love. The kind of love that makes a woman a mother as she pushes her child into the world. The kind of love that makes a person stay up all night to drive out to a hurting friend. The kind of love when someone lives on hospital food and sleeps on a waiting room chair just to spend as much time as possible comforting a loved one in the hospital. The kind of love that causes a parent to get up in the night with a scared or sick child. The kind of love that causes a pastor to pray for someone. The kind of love that a teacher shows when she will not let a student fail. The kind of love that is mittens to a homeless child and food to the orphans belly. The kind of love that causes strangers to share and pray for each other’s hurts in the blog world. The kind of love that is in a baby’s laughter and complete trust in his caregiver. The kind of love that is in answered and unanswered prayers.

Is it just me or have the last few years been absolutely crazy? The Sadness. The Joy. The Pain. The Fear. The Love.

Gabe, Stellan, Abby, Tripp, Julia, Harper, Hailee, Elianna, Isabella, Denise, etc…

Saturday morning I attended the funeral of Professor Mary DeYoung, “MDY” as she was known to her students. 58 years old, a short battle with cancer. A woman who loved. Deeply loved. Everyone.

Oh how i struggle with this daily… To love, and to let myself be loved… by others and by God. who are we to decide who gets love? Who are we to push away the love of others and deem ourselves unworthy?

We have left so much undone at the close of each day…

“Most merciful God, we confess that we have sinned against you in thought, word, and deed, by what we have done, and by what we have left undone. We have not loved you with our whole heart; we have not loved our neighbors [or] ourselves.”-CBP

Thursday, October 29, 2009

From MckMama's Blog

wishes

Stellan and Mama together in the hospital, October 29, 2008:

MamaStellanSnuggleDay3a

Stellan and Mama together in the hospital, October 29, 2009:

StellanMeBirthday

Happy birthday Stellan.

I may not have wished to spend your first birthday with you here, but I have always wished to spend your first birthday with you.

I got my wish. We are together.

And today, on your first birthday, I am wishing for all of your wishes to come true, too.

LORD, PLEASE PLEASE make him well!



Thursday, September 03, 2009

I Will Carry You


There were photographs I wanted to take
Things I wanted to show you
Sing sweet lullabies, wipe your teary eyes
Who could love you like this?

Kayleigh Anne June 23, 2008 - May 11, 2009

People say that I am brave but I'm not
Truth is I'm barely hanging on
But there's a greater story
Written long before me
Because He loves you like this


Tuesday Fiona October 11, 2006 - January 30, 2009



So I will carry you
While your heart beats here
Long beyond the empty cradle
Through the coming years
I will carry you
All my life
And I will praise the One Who's chosen me
To carry you

Such a short time
Such a long road
All this madness
But I know
That the silence
Has brought me to His voice
And He says...

I've shown her photographs of time beginning
Walked her through the parted seas
Angel lullabies, no more teary eyes
Who could love her like this?

I will carry you
While your heart beats here
Long beyond the empty cradle
Through the coming years
I will carry you
All your life
And I will praise the One Who's chosen Me
To carry you



These lyrics were written by Angie Smith (in collaboration with her husband Todd from Selah and Christa Wells) to her daughter Audrey Caroline.

Please continue to pray for Stellan and Abby as well as the families mentioned above...

Sunday, July 26, 2009

Please Pray!

http://mycharmingkids.net

From MckMama's blog:
Our little trooper tolerated massive stretches of SVT for hours and hours upon end before finally hitting the wall in the early hours of the morning today.



We've seen Stellan this bad once before. It's heartbreaking. He's still in SVT and is pale and kind of dusky in color, listless, can't focus on anything or stay awake, has thready pulses and a bit of edema, cold extremities, low blood pressures, is clammy, has a low core body temp and his nurse can't get an underarm temp for him at all right now. My sister is here with us right now and she's holding Stellan.

The experimental drug plan has been kicked to the curb. Dr. B ordered the "new" med that Stellan started on Friday to be discontinued immediately. An iv drip of a beta blocker that Stellan has been on before back in March and April has been started now instead, to try to get Stellan's heart and body out of immediate danger. He's still in SVT and things have started to go downhill quickly as noted by his appearance and symptoms.

As far as what the plan will be if and when the iv beta blocker gets Stellan's SVT under control, time will tell, I guess. For now, it's one baby step at a time for our sweet little baby. This is just so hard for our family, you guys, I am having a hard time explaining it.


Tuesday, April 21, 2009

Orange

Hope College


Wearing Orange for Stellan
http://mycharmingkids.net
Who is healing from surgery today!




Sweet baby boy...


Stellan has surgery in a few hours.
A dangerous ablation on his tiny heart to help with his SVT.

Oh LORD, hear our prayer

Please...



Monday, March 30, 2009

Tuesday, March 24, 2009

What's in a name?

As you all know, Stellan is quite sick he is displaying some of the symptoms he had before he was born when the Drs. tried to convince his mama to terminate her pregnancy. He is a fighter and an answered prayer...

anyways...

MckMama wanted Stellan to be known, so she began a name gallery (click on the words to see the old pics) where people all over the world spread the name of Stellan in crafty ways... and now Knowing Norrah is bringing Stellan's Name Gallery 2 to support the new prayer movement. Go to her blog (click on her blog name) to add your own and keep praying for Stellan!


Stellan @ Hope College
S and N are student IDs
T is Hope Orange and Blue colored pencils
E is rulers and Hope pens and "Green Army Guys" from one of Lemonjellos a local coffee shop's specialty drinks
L1 is a Hope vs Calvin game towel
L2 is a Hope water bottle and a ducky from Nykerk
A is my roomie's crocs in Hope colors and a Holland style little wooden shoe!





Monday, March 23, 2009

Not Now Monday...

In lieu of no Not Me Monday due to sweet Stellan's medical emergency. I bring you Not Now Monday.

Uncle Dick is in the hospital, Not now!



Aunt Pat has high BP, Not now!

People are hurting and confused, Not Now!


A friend from K-12's mom is really sick and in the hospital,renal failure and blood clots. Not now!

Babies with cancer, Not Now!




Stellan is in the hospital with SVT (Supra Ventricular Tachycardia=very high heart rate)like he had in-utero, Not now!

Richard (whom I lived with up north while attending NMU) is in the hospital on life-support, has pneumonia, blood clots. NOT now!

Please Lord, not now...

I trust You...

but please...

please...

not now...